A few weeks ago, I found the people out there that are like me. My new friends are ones who know pain,suffering, and above all- COMPASSION.
I may not know my new friends IRL (in real life) but my migraine mafia is strong.
These friends gave me validation that I never knew I was seeking. I have suffered with migraines for over 15 years of my 22 year life. I have had a beautiful ride so far, but I have had my dark days.
Migraines are fairly invisible, especially if you have never had one or have never been with a migraineur. You’ll get a glimpse of some of the symptoms I endure, but you will never know the pure agony of the pain or the fear of when the next attack may come.
You may see me with a hat on to keep my brain from leaking out of my ears.
you may see me doing some type of craft project to keep my mind anywhere but my own brain.
you may see the vertigo if I hold onto the walls when I walk
you might even hear me struggle to come up with the right words
but you do not know my story, my struggle.
At times, I doubt my own sanity and start believing the stigmas I try so hard to end.
A little while ago, a “friend” of mine told me to ‘get over myself’ and that ‘migraines are not life threatening nor fatal-so I should grow up.’
To you my “friend”, I say fuck you. Migraines have taken everything from me, but thankfully not my life.
I just want to remind you: Never judge or belittle someone else’s struggle, especially your own. If you need someone to listen, I’m always here.
I have an invisible illness and I am invincible .
Very well said. This is a post I feel everyone needs to read. All struggles are important.
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Thank you so much! Feel free to share!
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I have headaches all the time. But I REALLY hate it when I have a migraine. Especially when they are the blinding migraineS that might even make me feel sick 2 my stomach.
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I am so sorry for your pain! What other symptoms do you get when you have a migraine vs a headache?
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Headaches That Some1 Said Could Be Migraine Headaches http://katiemslife2016.blogspot.com/2016/01/headaches-that-some1-said-could-be.html
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That is beautifully written. I also love the idea of the hat! Many of mine are caused by unstable neck joints and they’re horrible.
Good for you for making getting this out there
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Can they do anything for unstable neck joints?
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Nope. I have unstable joints all over and have a variety of weird and wonderful braces!
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I would love to hear more/see the braces. Would you be willing to do a guest post one day to explain your condition?
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Yes, I’d love to help raise awareness. I’m flat out teaching for the next week, but could put something together soon?
Should I post it on my blog for you to use? (I’ve never been asked to guest blog before!)
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You can of course post it on your page or you can email me and I can link you post to your page, however you would like
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Hi,
The requested (or at least the written) blog post is here 🙂
https://thehippygeek.wordpress.com/2016/02/12/ehlers-danlos-syndrome-for-dummies-and-orthopaedicrheumatology-consultants/
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I couldn’t agree with you more and this post is wonderfully written. I saw your post on Blogger Connect and I’m glad it led me to your great blog!
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Thank you! I have been trying so hard to connect with other bloggers-any tips?
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I’ve been trying to connect with other bloggers through twitter chats and facebook groups but besides that, I’m still having trouble.
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Just any groups or any specific? xoxoash is my twitter, i follow back
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followed you! and try https://www.facebook.com/groups/BloggersUnitedNetworking/, https://www.facebook.com/groups/bloggingboost/ and https://www.facebook.com/groups/commentsharesupport/ !
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Very well said. Migraines are a horrible thing to live with. They affect all parts of your life – I am glad you know that you are invisible though!
http://www.CheyanneFulton.com
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Yes! I struggle with anxiety everyday. Even though it’s not physically visible, it is very real. I’ve had so many people tell me to “just get over it” or “just calm down”. It doesn’t work that way!
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YES! People are so cruel sometimes. “Just calm down” = %$@#$(#U#I(#IWEJDFLNDFLKN NO! I CAN NOT SIMPLY CALM DOWN!
That’s how I always feel
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So well put! Your “friend” sucked. You should never judge someone else’s life. You don’t walk in their shoes day in and day out so you can’t begin to know what they’re feeling.
-M
http://www.violetroots.com/blog
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